30 THINGS ABOUT MY INVISIBLE ILLNESS YOU MAY NOT KNOW

iiweekadget-blogging1. The illness I live with is: Idiopathic Intracranial Hypertension (Pseudotumor Cerebri), Essential Tremor, and Interstitial Cystitis
2. I was diagnosed with it in the year: 2011
3. But I had symptoms since: 2003

4. The biggest adjustment I’ve had to make is: letting go of what once was
5. Most people assume: that if I feel better this minute, I will feel better the rest of the week
6. The hardest part about mornings are: convincing myself to get out of bed (but in all honesty, I was this way before I got ill)  😉
7. My favorite medical TV show is: oh please, like I don't get enough of that in real life?  I don't watch those.
8. A gadget I couldn’t live without is: my laptop
9. The hardest part about nights are: pain
10. Each day I take 7 pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: am open to the possibilities
12. If I had to choose between an invisible illness or visible I would choose: neither.... I would choose a temporary illness
13. Regarding working and career: these will probably never be a possibility for me again, but my goal was always to be a career Wife and Mommy, so those are the skills I miss
14. People would be surprised to know: that I laugh just as much or more now than I ever did before
15. The hardest thing to accept about my new reality has been: becoming an invisible person as I lose the abilities that matter to the world
16. Something I never thought I could do with my illness that I did was: live in joy
17. The commercials about my illness: don't show real people or real life
18. Something I really miss doing since I was diagnosed is: driving
19. It was really hard to have to give up: being active in my Church
20. A new hobby I have taken up since my diagnosis is: watercolor painting (mostly bookmarks)
21. If I could have one day of feeling normal again I would: Thank God!
22. My illness has taught me: humility, patience and a greater dependence on God without shame
23. Want to know a secret? One thing people say that gets under my skin is: I've been sick for (3) whole days, enough is enough!  I have too much to do to be sick! *commence eye rolling*
24. But I love it when people: hug me, laugh with me, and really listen
25. My favorite motto, scripture, quote that gets me through tough times is: "That is why we never give up. Though our bodies are dying, our spirits are being renewed every day." - 2 Corinthians 4:16
26. When someone is diagnosed I’d like to tell them: YOU matter, GOD is your strength, and let's find your CAN!
27. Something that has surprised me about living with an illness is: how much good we can still do, and how much we still have to offer!
28. The nicest thing someone did for me when I wasn’t feeling well was: pray for me
29. I’m involved with Invisible Illness Week because: invisible illness shouldn't create invisible people!  
30. The fact that you read this list makes me feel: honored, humbled and thankful

 


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May God Bless You,

Shelly

God’s Watermarks

Anyone who believes in me may come and drink! For the Scriptures declare, ‘Rivers of living water will flow from his heart.’” – John 7:38

photo credit: sandyhd via photopin cc

photo credit: sandyhd via photopin cc

I lived for many years in a desert.  A desert is a truly beautiful landscape.  I relate to the desert because desert landscapes and animals can sustain themselves in the harshest of conditions.  One of the most fascinating things about it is that even in long periods of time with little or no rain, it is easy to find the pathways where life-giving water has flowed or pooled...  channels cut deep into the rock, black marks showing the borders of streams and waterfalls, and odd shapes chiseled by flowing water.  Most importantly, you can find trees and flowers, plants and other signs of life along the path where water has flowed before.  Their roots dig deep below the rock and sand to find the remaining water that sustains them during the periods of drought.

I pray that my life is like that.  Even in times of hardship, I want people to be able to look at me and see God’s watermarks.  I want Christ to be recognizable in me, no matter what circumstances surround me.  Even if my life looks like a barren wasteland from the outside looking in, I hope that I can show the world that God refreshes me often with his living water.  I want them to see proof of my faith that the rains will come again, and when they do, they will flow and pool right here.

 

Dear God, even if my day is barren and dry today, please help me to show others that your living water flows through me.  Let your watermarks show without any words from my mouth.  In Jesus’ Name, Amen…

 


If you have been helped by this post and think it could be helpful to someone you know, please share this post on the social network of your choice for me.

All you have to do is click one of the buttons below.

May God Bless You,

Shelly