1. The illness I live with is: Idiopathic Intracranial Hypertension (Pseudotumor Cerebri), Essential Tremor, and Interstitial Cystitis
2. I was diagnosed with it in the year: 2011
3. But I had symptoms since: 2003
4. The biggest adjustment I’ve had to make is: letting go of what once was
5. Most people assume: that if I feel better this minute, I will feel better the rest of the week
6. The hardest part about mornings are: convincing myself to get out of bed (but in all honesty, I was this way before I got ill) 😉
7. My favorite medical TV show is: oh please, like I don’t get enough of that in real life? I don’t watch those.
8. A gadget I couldn’t live without is: my laptop
9. The hardest part about nights are: pain
10. Each day I take 7 pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: am open to the possibilities
12. If I had to choose between an invisible illness or visible I would choose: neither…. I would choose a temporary illness
13. Regarding working and career: these will probably never be a possibility for me again, but my goal was always to be a career Wife and Mommy, so those are the skills I miss
14. People would be surprised to know: that I laugh just as much or more now than I ever did before
15. The hardest thing to accept about my new reality has been: becoming an invisible person as I lose the abilities that matter to the world
16. Something I never thought I could do with my illness that I did was: live in joy
17. The commercials about my illness: don’t show real people or real life
18. Something I really miss doing since I was diagnosed is: driving
19. It was really hard to have to give up: being active in my Church
20. A new hobby I have taken up since my diagnosis is: watercolor painting (mostly bookmarks)
21. If I could have one day of feeling normal again I would: Thank God!
22. My illness has taught me: humility, patience and a greater dependence on God without shame
23. Want to know a secret? One thing people say that gets under my skin is: I’ve been sick for (3) whole days, enough is enough! I have too much to do to be sick! *commence eye rolling*
24. But I love it when people: hug me, laugh with me, and really listen
25. My favorite motto, scripture, quote that gets me through tough times is: “That is why we never give up. Though our bodies are dying, our spirits are being renewed every day.” – 2 Corinthians 4:16
26. When someone is diagnosed I’d like to tell them: YOU matter, GOD is your strength, and let’s find your CAN!
27. Something that has surprised me about living with an illness is: how much good we can still do, and how much we still have to offer!
28. The nicest thing someone did for me when I wasn’t feeling well was: pray for me
29. I’m involved with Invisible Illness Week because: invisible illness shouldn’t create invisible people!
30. The fact that you read this list makes me feel: honored, humbled and thankful
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May God Bless You,